Through our work to raise awareness and promote research into chromosome 15q duplications, we seek to find targeted treatments so that affected individuals can live full and productive lives. Together with our families, Dup15q Alliance is working towards a better tomorrow for children with chromosome 15q11.2-13.1 duplication (dup15q) syndrome.
As part of our mission, Dup15q Alliance seeks to unite families, researchers, and professionals; and promote research, awareness, and understanding of chromosome 15q11.2-13.1 duplication syndrome and related disorders. Dup15q Alliance formally endorses and funds research and collaborates with researchers interested in research on chromosome 15q duplications by disseminating research information and promoting opportunities for Dup15q Alliance families to participate in research studies.
The Dup15q Alliance is determined to find treatments and make positive changes to the lives of all those affected by dup15q syndrome. We NEED to find better treatments for all of the symptoms of dup15q syndrome. We NEED to know how those with dup15q syndrome develop over time. We NEED to know why some children affected by dup15q syndrome have seizures and some don’t. We NEED to emphasize the importance of research. We may be rare but we are not small.
We NEED your help!
You can help to create better tomorrows for all those affected by dup15q syndrome.
Donations can also be made by check or money order. Make check payable to “Dup15q Alliance” and send to:
250 N Trade St, Ste 205 PMB 155
Matthews, NC 28105