
Join us and go Sugar Free for Hilary!
We are no longer accepting donations on this campaign, but there are other ways for you to support us today!
Join us and go Sugar Free for Hilary!
Join the challenge and go sugar free this November. Kick your sugar habit, retrain your taste buds and feel great by doing good. Turn your sugar-free efforts into fundraising dollars to kids like Hilary and families affected by Dup15q Syndrome.
Go Sugar Free for Hilary!
Did you know that more than half of those affected by Dup15q Syndrome have had at least 1 seizure in their lifetime? Many families turn to the ketogenic diet to assist with seizure control. One of the main components to the ketogenic diet is NO SUGAR! Can you do it?
Hilary was diagnosed with a rare genetic condition called Chromosome 15q Dupliation Syndrome at 4 years of age. She lives in Newfoundland, Canada with her parents & big sister Grace. Hilary loves playing with her 'house area' and play food, hide & seek with sister Grace, swimming, and having a good hearty laugh at one of her jokes. When she wasn't meeting her milestones around age 10 months, her parents began the hunt for answers and seeking support and therapy from many local services.
Children with Dup15q may struggle with delays in speech, ability to move and learn, behaviour difficulties, and with seizures. At present, there are just over 1300 known cases worldwide of Dup15q. Hilary's family has been able to learn about and better understand Dup15q with the help of the Dup15q Alliance, an organization that is supporting research and knowledge for individuals and families from around the world! The Alliance hosts an international conference every 2 years and granted Hilary's family with a travel bursary last year allowing her Mom to attend the amazing & unforgettable event in Los Angeles, California.