Steve and Jennifer Kelly

Steve and Jennifer Kelly's Fundraiser

I am Running for a Reason! Together we can support the Dup15q Alliance in their mission to provide family support, promote awareness, research and targeted treatments for those affected by Dup15q Syndrome.  image

I am Running for a Reason! Together we can support the Dup15q Alliance in their mission to provide family support, promote awareness, research and targeted treatments for those affected by Dup15q Syndrome.

Support me in making each mile count and help make a difference, please give today.

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$975 towards $1,000

I want to make the miles count as I Run for a Reason. I am running to raise awareness and funds for Dup15q Alliance. Our daughter, Caitlin, was diagnosed with Dup15q when she was just 8 months old after having infantile spasms (seizures). Over the last 10 years, we've had our ups and downs, but have watched our baby grow into an amazing young girl who is full of love, compassion and joy that makes others light up when they meet her.

Getting the word out about dup15q syndrome is a key piece of the Alliance's mission.Their fundraising mission is simple: encourage personal philanthropy that helps underwrite research, potential treatments, and a variety of support opportunities for affected children and their families.

Starting in the fall of 2019, I participated in my first 5k and completed five races by the end of the year. I have scheduled one each month for 2020 and hope to expand to a 10k at some point this year. The kids get a kick out of the medals that I bring home to them and I'm actually starting to like running more and more!

We are so proud of all that Caitlin has conquered, all that she continues to do, and all that she will accomplish in the future. Running is definitely not my favorite thing to do, but it is easy when I think of all that Caitlin has endured in her first 10 years. Please join me in celebrating and honoring her accomplishments as I Run for a Reason!

Just a small donation will go a long way to helping me meet my goal for DUP15Q ALLIANCE.