Wear Blue for Dup15q!

February 28th is the designated "Rare Disease Awareness Day" across the world. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. Join me in supporting real change.

Dup15q Syndrome is a rare genetic disorder that can cause developmental delays, sensory processing disorder, epilepsy and is the leading genetic link to Autism. To learn more about Dup15q Syndrome visit www.dup15q.org.

As many of you know, our oldest son Dominic was diagnosed with Dup15q syndrome just after his 2nd birthday. We began questioning when we wasnt hitting the typical milestones as a baby. The news was hard but we know that God has a big plan for his life. His major struggles are with fine and gross motor skills, difficulty with coordination and balance (ataxia), global delays (speech and cognitive), and epilepsy. His seizures began last April and it has been our biggest struggle yet. We have seen regression in all areas of development since the seizures started. Our hope is that we will soon be able to get the seizures under control so he can begin to progress and reach his full potential.

We are hoping to raise funds and awareness about this rare disorder to help Dominic and his Dup15q brothers and sisters.

All funds raised will directly support the Dup15q Alliance. Their mission is to provide family support, promote awareness, research and targeted treatments for dup15q syndrome.

Let's support good in the world and make a difference. Show Rare you care and join us in a dress down day on Rare Disease Day in support of the Dup15q Alliance and children, who have been diagnosed with the rare genetic disorder Dup15q.

Any donation large or small can help make a difference!