Emmylou Allen

Emmylou Allen's Fundraiser

Kelsey’s Krew for Dup15q image

Kelsey’s Krew for Dup15q

Join us in support of the Dup15q Alliance

We are no longer accepting donations on this campaign, but there are other ways for you to support us today!
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$242 towards $2,500

February 28th is the designated "Rare Disease Awareness Day" across the world. In honor of Kelsey, we are hosting a fundraiser for the Dup15q Alliance Wednesday, February 28 at 7 PM - 9 PM CST. Join us online here or in person at our home. All vendors will be donating a portion of sales to the Alliance!!

Kelsey is our third child. She is an amazing 5 years old! When she was 9 months old, it had become obvious she was behind developmentally. After 9 months of early intervention, she was making progress. However, she was not catching up. Through a long process of testing, we discovered she had a very rare genetic syndrome called Dup15q or IDIC 15. When doctors couldn't answer most of our questions, we started googling. While usually not a good thing, it led us straight to the Alliance. They helped us understand her diagnosis and connect us to other parents. Kelsey is rare, but we are not alone in this!

Dup15q Syndrome is a rare genetic disorder that can cause developmental delays, sensory processing disorder, epilepsy and is the leading genetic link to Autism. To learn more about Dup15q Syndrome visit www.dup15q.org.

All funds raised will directly support the Dup15q Alliance. Their mission is to provide family support, promote awareness, research and targeted treatments for dup15q syndrome.

Let's support good in the world and make a difference.

Some of our Vendors who will be donating a portion of their proceeds at this event to the Dup15q Alliance!