Carly Maderer

Carly Maderer's Fundraiser

Rare Your Blue for Dup15q! image

Rare Your Blue for Dup15q!

Join me support of the Dup15q Alliance

We are no longer accepting donations on this campaign, but there are other ways for you to support us today!
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$729 towards $500


Dup15q Syndrome is a rare genetic disorder that can cause developmental delays, sensory processing disorder, epilepsy and is the leading genetic link to Autism. Our precious Kennedy was diagnosed with Dup15q Syndrome fairly young when she first experienced infantile spasms, a type of seizures in infants. She has also experienced development delay and has epilepsy. We are working hard every day to learn more about Dup15q Syndrome and help Kennedy reach her fullest potential. To learn more about Dup15q Syndrome visit www.dup15q.org.

We are also raising funds to directly support the Dup15q Alliance. Their mission is to provide family support, promote awareness, research and targeted treatments for dup15q syndrome.

Let's support good in the world and make a difference. Show Rare you care and join us in support of the Dup15q Alliance and children, who have been diagnosed with the rare genetic disorder Dup15q.


Visit the Dup15q Store for Gear!