Would you consider continuing your support and making a gift in honor of Gavin?

As many of you know, our son Gavin was diagnosed with dup15q syndrome when he was 5 ½ years old. Dup15q syndrome is a neurodevelopmental disorder caused by extra genetic material on the 15th chromosome.

It’s been some time since we got together. While I don’t see another GQ event in the near future because, well... life is busy with teenagers! I wanted to give you an update on Gavin and all the amazing things happening at Dup15q Alliance.

Gavin has entered his 2nd Year at Lincoln Way 210 Transition program. He is enjoying his friends and continues on a path of spreading kindness and joy wherever he goes. He is still involved in his Challengers baseball league, rides horses at HHH Ranch therapeutic riding center, and continues with his recreational programs. Keeping him active and engaged is a huge part of his success.

We continue to focus on all the positive activities in his life, but our other reality is that we are dealing

with an emotional year of unexpected and unexplained seizures. Despite going through a magnitude of

tests, we are left with little answers as to why seizures are returning and if we can expect

them to be controlled or continue into adulthood. It can be really scary but we have him

surrounded by a wonderful team and Dup15q Alliance to support us.

Even with the uncertainties in our journey, I am so excited to tell you that the first dup15q syndrome-specific clinical trial has just opened! You helped make this happen through your support at our GQ events. In addition, the Alliance has expanded clinical care to 18 specialty clinics and just closed its largest family conference to date with over 500 families in attendance.

We are so proud of how far the Alliance has come over the years, but there is still so much work to be done. Many families struggle with the multiple symptoms that come with dup15q syndrome, including sleep disturbances, limited communication, GI issues, uncontrolled seizures, feeding difficulties, mobility issues, and others.

Dup15q Alliance is determined to find treatments and improve the daily lives of anyone affected with dup15q syndrome. The Alliance relies on fundraising efforts to continue to expand programs and resources and to support research into specific symptoms to help more patients just like Gavin.

Mike and I have set a goal of raising $10,000 before the end of the year. Would you consider continuing your support and making a gift in honor of Gavin to the Alliance as they continue to work towards targeted treatments and improving the quality of life for families affected by dup15q syndrome? You can make a gift by sending a check or simply going directly to www.dup15q.org/gavin. Thank you in advance from all of the families the Alliance will support across the world this year!

With Gratitude,

Mike and Tessa Quinlan & Family