Introducing the LADDER Learning Network, a strategic rebranding of the 15q Clinical Research Network.
The LADDER Learning Network is a strategic partnership between Dup15q Alliance and Angelman Syndrome Foundation to provide the best possible care to those affected with dup15q syndrome and Angelman syndrome, two rare disorders of the 15th chromosome.
“While Angelman syndrome and dup15q are different, the same set of medical providers often care for both populations of individuals,” said Elizabeth Jalazo, MD, and Clinic Director for LADDER Learning Network. “The combination of data collection and cross-disorder investigation is key to driving discovery.”
Dup15q Clinics and the LADDER Database are the most essential functions of the LADDER Learning Network.
Our clinics are also a foundation to support future clinical trials by having established sites with experts and patients in place to conduct those trials.
As leaders in advancing breakthrough research and life-changing therapeutics, Dup15q Alliance and ASF partnered to launch the LADDER Learning Network with the purpose of:
- Connecting families with experienced, highly specialized medical providers, through its Dup15q Clinics and ASF Clinics. Providers within the clinics have experience and expertise in treating these two rare disorders, which has historically been difficult for families to find.
- Connecting medical providers with one another, through monthly video calls, so they can share information about their most challenging cases.
- Connecting the industry with much-needed locations to host clinical trials, with the benefits of having patients in place when they become available.
- Maintaining the LADDER Database, its global network of patient data, to ease the burden of paperwork on families
- LADDER Learning Network plans to launch four new clinics this year. Two opened in February—one at Boston Children’s Hospital and one at Children’s Hospital Los Angeles.
“We envision a world where families, clinicians, and advocates enable dup15q individuals to live life to their full potential,” said Executive Director, Carrie Howell.
This year, Dup15q Alliance has committed 44% of its annual budget to research and clinics.