2022 - BIG GIVE for DUP15q image

2022 - BIG GIVE for DUP15q

Dup15q doesn't come with a manual, it comes with a family that never gives up.

$43,751 raised

$50,000 goal

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Each May our community comes together, as we go LIVE for our annual BIG GIVE event

LIVE streams will include Dup15q doctors, researchers, and parents. It is a day of sharing stories, spreading awareness about Dup15q Syndrome, and answering questions.

Our goal this year is t raise 50k in 24 hours

Donations can also be made by check or money order. Make check payable to “Dup15q Alliance” and send to:

Dup15q Alliance
P.O. Box 1669
Highland Park, IL 60035

Sneak Peek of our Line Up!

Our goal of $50,000 will help support our LADDER Learning Network.

There are 4 essential functions of the LADDER Learning Network:

Connect Patients to Care

Connect Providers to other Providers

Clinical Trials

LADDER Database

One of the biggest challenges of families affected by dup15q syndrome is finding clinical support that provides the expertise about their child's needs. Just 11 short years ago, the first specialized care Dup15q Clinic was founded. Through the drive, passion, and support of our community, we opened 8 Dup15q Multidisciplinary Clinics in 2016 providing evidence-based clinical care for individuals with Dup15q across the country.

Today, we have facilitated 17 Dup15q Clinics and created the LADDER Learning Network with the goals of expanding our clinics and linking providers together to share information about their most challenging cases, linking patients to clinical trials, and linking all the data together to pave the way to life-changing therapeutic treatments.

There has never been progress in any rare disease without the advocacy of caregivers and the support of donors!

Thank you to our Corporate Sponsors

Silver Sponsor

Believe Sponsor

Community Believe Sponsor

The Philo Family